Independent news from the Indigenous Media Freedom Alliance

Native leader, double lung recipient, encourages all to register as organ donors

Norrine Smokey-Smith Norrine Smokey-Smith
One donor can save and enhance up to 75 lives through organ, eye, and tissue donations.

 

Norrine Smokey-Smith is often thinking of ways to inspire people to become registered donors. As a double lung recipient, volunteer for Donate Life Northwest, and member of the Washoe Tribe of Nevada and California, she is uniquely aware of the health challenges facing American Indians.

  • American Indians and Alaskan Natives are 50 percent more likely to have kidney failure than White Americans.
  • Right now, 1,124 American Indian and Alaskan Natives are waiting for an organ transplant in the United States.
  • Last year, 63 American Indians died while waiting for a transplant.

What is the solution? More registered donors. One donor can save and enhance up to 75 lives through organ, eye and tissue donations.

“Our population is in great need. And we’re trying to encourage others within our Native community to consider giving as well. It doesn’t matter what color you are,” said Smokey-Smith.

During the weeks of July 8-21, Smokey-Smith is part of Donate Life Northwest’s campaign to raise awareness in multicultural communities about the importance of organ, eye, and tissue donation and transplantation. The campaign is called ECHO – Every Community Has Opportunity, the opportunity to save and enhance lives.

Before her double lung transplant in March 2016, Smokey-Smith lived a full life as an educator, mother, wife, and Washoe tribal member. She served on her tribal council for 12 years, has served on numerous tribal committees and nonprofit boards, and led the Indian Education Project for Portland Public Schools in Oregon for 15 years.

“My life’s work has been focused on education equity and social justice. Now that includes educating my community about organ, eye, and tissue donation. Everyone should register as a donor. It’s just the right thing to do. Only 1% of registered donors are actually eligible to become donors, so we need everyone to register. Donation saves lives,” Smokey-Smith said.

After a diagnosis of Nonspecific Interstitial Pneumonitis in 2002, Norrine was one of the lucky ones who received the organs she needed to live. On March 15, 2016, she and her husband drove to University of Washington Medical Center in Seattle for her lifesaving transplant from a generous donor.

“I am forever indebted to my donor and their family for giving me the gift of life. I am incredibly grateful for each day the Creator blesses me with. Coming so close to death makes one realize how very precious life is,” Smokey-Smith said.

Smokey-Smith continues to give back by talking about organ, eye, and tissue donation, and supporting others who are waiting for donations. Last year, she and her husband created a video telling her story for the national ECHO campaign. They won third place and were featured in social media and on the national Donate Life America website.

This year Norrine and many other Donate Life Northwest volunteers will be educating their communities about the importance of organ, eye, and tissue donation. Anyone can participate:

  • Share your donation or transplant story on social media using the hashtag #DonateLifeECHO and tagging @DonateLifeNorthwest (Facebook), and @donatelifenw (Instagram and Twitter).
  • Check out what is happening on Facebook or Instagram, and post a photo or message about why you support organ donation.
Jodi Rave Spotted Bear

Jodi Rave Spotted Bear is the founder and director of the Indigenous Media Freedom Alliance, a 501-C-3 nonprofit organization with offices in Bismarck, N.D. and the Fort Berthold Reservation. Jodi spent 15 years reporting for the mainstream press. She's been awarded prestigious Nieman and John S. Knight journalism fellowships at Harvard and Stanford, respectively. She also an MIT Knight Science Journalism Project fellow. Her writing is featured in "The Authentic Voice: The Best Reporting on Race and Ethnicity," published by Columbia University Press. Jodi currently serves as a Society of Professional Journalists at-large board member, an SPJ Foundation board member, and she chairs the SPJ Freedom of Information Committee. Jodi has won top journalism awards from mainstream and Native press organizations. She earned her journalism degree from the University of Colorado at Boulder.